Welcome to My EDS Diaries!

I have recently been diagnosed with Ehlers-Danlos Syndrome-Hypermobility Type & have decided to blog my past experiences, where I am now & where I hope to go in the future.

There are so many people out there who will find what I write applies to them. I used to be one of those people, I know what it feels like!

4 years ago I injured my back & sought out help. This is where things slowly started to fall into place. My pain increased in my back but nobody could understand why-all I kept hearing was You’re Too Young, It Will Take Time!

Yes I am young, but I am old enough to understand & feel the pain I feel. Over the years I visited lots of physios, an osteopath, 2 MSK clinics, 2 MRI’s, had multiple sports massages~All of which made no difference whatsoever! Alongside this the meds I was given just kept getting more potent.

Looking back at my childhood & history previous to my back injury there were alot of tell-tale signs that this “thing” may be something more than a few broken bones.

At 16 I went to a stage school & my body couldn’t cope..I was very strong & dancing for 12 hours a day yet my left knee kept subluxing. Still-after my knee surgery nothing was mentioned about EDS.

I have had multiple subluxes, dislocations, torn tendons & ligaments but this was apparently “nothing”.

I started researching hypermobility & came across EDS-it was like a hallelujah moment! My doctor could of cared less & no one I saw understood.

In January 2013 I found one of the leading consultants linked to EDS, paid a small fortune but worth every penny. I finally received my diagnosis.

Throughout the blog I will talk about my experiences of this journey & I would love to hear your thoughts or share your stories.

I hope you enjoy reading 🙂